Team Ashley - Choose Joy Auction and Benefit {Let the Countdown begin!}

The big auction benefiting Ashley is just a few days away! I can hardly wait to see what the amazing blogging community and Team Ashley has put together! Of course my canvas will be one of over 200 items up for grabs, with 100% of the funds raised going toward Ashley's medical bills.

There was a sneak peek today of some other items listed in the auction over at Evy's Tree. Head on over and check them out. Stephanie Corfee and Ashley formed a partnership long ago and she continues to capture me with her free flowing doodles. I adore the super cute stuff she designed for the auction. Being a big doodler myself, I recently bought Stephanie's book. I absolutely LOVE it!

So, take a look at the auction sneak peek and be sure to check back on Monday for a link to the auction site!

Starting Kindergarten with Sensory Processing Disorder

This is part 2 of a series I'm writing about our SPD journey. You can read part 1 here.

In June of 2011, Taylor moved from her pre-K class at the preschool she'd been attending for 3 yrs, into the preschool's kindergarten class. While this class was just across the hall from her pre-K class, in many ways, it was a whole different world. First, her 2 best friends that she'd been with for the last 3 yrs were no longer at her school. They took the summer off and then moved into another kindergarten program. In the pre-k class, the students spent a fair amount of time standing at tables while doing their "academic" work. There was a lot of time for free play and art projects. Kids were also allowed to have a doll or stuffed animal to sleep with at nap-time.

In the kindergarten classroom, students sit in chairs at desks that are in groups of 4 to do their academic work. Their work time is generally 3 hrs long, with a short recess in the middle. There are 15 students in her class (remember, she's in a private kinder program). After lunch, the students have naptime for 2hrs and then snack, then recess and then free play time.

The transition to kindergarten was challenging for a few reasons:

1) Taylor was expected to sit, confined to a chair, for longer amounts of time

2) There was less opportunity for messy art projects (gluing, painting, etc)

3) She was no longer able to sleep with her beloved Sally at naptime, because the kinder class has a "no dolls" rule.

4) She was expected to focus on academics for a longer period of time.

5) She had to adjust to a new teacher's style and a new classroom routine.

To make matters worse, the transition occurred in the Summer in the desert. Summer temps where we live regularly get well over 100* which obviously limits outdoor playtime, which limits Taylor's ability to get the vestibular and proprioceptive input that she needs. In other words, she wasn't able to run, climb and swing outside every day. The vestibular sense is related to movement. Taylor is a sensory seeker, so she needs to move much more than other kids. Proprioception is related to body awareness and input to one's muscles and joints. So, deep touch, pushing, lifting and climbing are examples of activities that give Taylor the proprioceptive input she needs.

So, when Taylor would come home at the end of the day from kindergarten, she would literally be bouncing off the walls. She would be running, climbing on furniture, doing flips off the chairs in the living room, kicking me, pushing me (oh, how happy I am that she's ditched that behavior!), pinching me, mouthing any object she could get her hands on, talking and yelling and singing excessively. It was exhausting just watching her!

Fortunately, I have an amazing friend who has a son with Autism. One evening in September, this friend came over to hang out and observed many of the behaviors that were driving me batty. We began talking about strategies to help manage Taylor's sensory issues. I read The Out of Sync Child again. I read The Out of Sync Child Has Fun, again. And, most importantly, I put things in place at home to help Taylor get the sensory input she desperately needs to help her manage her behaviors.

While I've done a LOT of research on SPD, I'm still feeling very overwhelmed and confused about how to best implement strategies and sensory activities with Taylor. Occupational therapy is the recommended treatment for SPD. Unfortunately, we've hit some roadblocks in trying to access occupational therapy for Taylor. In my next post, I'll share the challenges we're experiencing, how we're navigating this bumpy road, what we're doing in the meantime to help Taylor.

Sensory Processing Disorder...My amazing girl has it!

I've struggled with blogging about my daughter's newly diagnosed sensory processing disorder (there's controversary in whether it's even a "diagnosis" because it's not in the DSM, but I'll discuss that another day). I've wondered if it's exploitation. I've wondered what she'll think about what I've shared when she grows older and she reads my blog. I've wondered if I would be doing more harm than good by blogging about SPD and how it affects our family. But, ultimately, helping people is who I am and what I'm all about. I'm a social worker. Not only is it what I do, it's who I am. When faced with blended family issues and divorce and depression as a teenager, I began volunteering and helping others in similar circumstances. That was what first got me hooked on social work. When Taylor was diagnosed with food allergies, I quickly joined Kids With Food Allergies to get support and before long, I regularly shared our experience as a way to help others through their journey with food allergies. So, it just seems logical to me that I would blog about SPD as a way to not only process and record what we experience, but also to help other parents and families trying to manage SPD.

So, What is SPD?

Sensory Processing Disorder (SPD, formerly known as "sensory integration dysfunction") is a condition that exists when sensory signals don't get organized into appropriate responses. Pioneering occupational therapist and neuroscientist A. Jean Ayres, PhD, likened SPD to a neurological "traffic jam" that prevents certain parts of the brain from receiving the information needed to interpret sensory information correctly. A person with SPD finds it difficult to process and act upon information received through the senses, which creates challenges in performing countless everyday tasks. Motor clumsiness, behavioral problems, anxiety, depression, school failure, and other impacts may result if the disorder is not treated effectively.

source

Looking back, I see several SPD symptoms that were present with Taylor as an infant and toddler. She had horrible sleeping patterns as an infant. I could talk for ages about how she never slept more than 20 minutes in the first 3 wks of her life. When she *did* sleep, she was either in our arms, or in her swing. She absolutely adored being carried in a sling. She lived in her sling. I think I would have gone insane if I didn't know about babywearing. She finally started sleeping for an hr to 2 hrs at a time after we watched The Happiest Baby on the Block. And we swaddled her and put her in her swing to sleep. By 3 months, Taylor was diagnosed with reflux, so we chalked all of this up to reflux. Now, I think it was a combination of SPD and reflux. She nursed for comfort and everytime she nursed, she played with my hair, often getting her fingers caught in my hair.

Once Taylor started solids, she stuffed herself with food. When she began drinking from a cup, she "chugged" her drinks. It was as though she didn't know how to drink slowly (she still does this). As a toddler, she was much more active than her playmates. When I introduced her to messy art, she could never get enough. I remember telling people that she never watched TV, even if I put on Sesame Street, she'd never be engaged enough to focus on it. Her favorite past-time was jumping on the couch. When we went to the playground, I could never push her high enough on the swing.

While developing appropriately, at age 2, she was still not sleeping through the night. She was still nursing and still using a pacifier for comfort. We often had to tell her "gentle" when playing with us, our animals and other children. These reminders to be gentle had little impact, even with us modelling appropriate touch. She could destroy a tidy and well-organized room within minutes of being in it. Remember, she got the nick-name Tornado Taylor. By this age, she had also worn a bald spot on the right side of her head from twirling her hair constantly.

Picking her up from preschool was a nightmare (still is a lot of days). She would fight and argue and throw tantrums and run from me. I used to think the teachers must have wondered if I abuse her and that's why she hated going home. She loved being at school and all the teachers adored her (still do!).

At about 2 1/2, she was able to tell me that her jeans were "bad" and they should go in "time out" because they "hurt" her. I've only been able to get her to wear denim a handful of times since then. It was also around this age that I would notice she chewed and sucked on the bottom of her shirt or the cuffs of her sleeves. When she was 3 I was concerned about her tantrums. She would get sooo incredibly upset, she'd often become physically aggressive toward me, and she'd kick walls and doors. I'd have to physically restrain her to keep her safe. I've had some training in how to do this safely, since I've worked with children who become violent.

It was also around this time that I really had to engage her in structured activities at home on the weekends in order to keep her "well behaved". I started doing more messy art activities with her. At the time I had no idea these were sensory activities. I thought we might be on the road to a diagnosis of ADHD because she was so active and continued to run circles around her peers.

When she was almost 4 I remember thinking "Are kids still teething at four because, man this kid sucks and chews on everything!". We found ourselves saying "If it's not food it doesn't go in your mouth!" several times a day.

And then...someone suggested I read Raising Your Spirited Child. WOW! That was a game changer for me. In reading that book, I found a new understanding of my daughter. I realized not only is she spirited, she also displayed a lot of sensory seeking behaviors.

In the midst of all this, we were still dealing with reflux, a new diagnosis of asthma and a few bouts of pneumonia. Taylor was also coughing while eating (and still "chugging" her drinks) which can be an indicator of swallowing issues. So, after our GI ordered several tests and procedures, we landed ourselves in an Occupational therapist's office for a feeding evaluation. I will feel forever indebted to the OT, Stacy who finally saw the same child that I saw. Stacy determined that Taylor's feeding issues were related to sensory issues.

Stacy commented on how cute and playful and smart Taylor is (she is all of those things!). But, within minutes, Stacy had turned the discussion from feeding issues to the behaviors she was seeing Taylor display in her office. Taylor was crawling on the floor on her hands and knees and spinning herself. She was bouncing on the therapy ball and climbing to reach a bin full of dried beans. Stacy started asking if I was seeing any sensory seeking behaviors at home. I immediately felt relieved and validated. I left with a greater understanding of my daughter, a list of heavy work activities, and a recommendation to read The Out of Sync Child.

Taylor's "sensory issues" had been confirmed. But, as I wrote about in this post, I wasn't considering a diagnosis of Sensory Processing Disorder at that point. It wasn't until she entered kindergarten that I became more concerned about her sensory issues.

Stay tuned for part 2 of our SPD journey later this week.

She Chooses Joy - {A Mixed Media Canvas for the Choose Joy Auction and Benefit for Ashley Hackshaw}

It's done!!! This is my finished canvas, created in honor of Ashley. This item will be up for auction on 2/27/2012. Can you see all the detail here? It's a colorful and whimsical 9x12" canvas layered with papers and ink and paint! There's a piece of a vintage sewing pattern, sheet music, book text, and tissue tape. There's oodles of artsy goodness on here! Click on any of the photos to enlarge them.

The paint is high quality fluid acrylic paint in hues of turquoise and yellow. There are various stamped images including a camera, a dress form and lots of numbers! The piece is also loaded with rub ons and several phrases:

Start your day with a smile and end your day with joy.

Great things are possible!

Life is filled with great treasures.

A little of what you fancy does you good.

And of course, the main phrase is "She chooses joy".

The girl who's the star of the canvas is casual with an an artsy flare, just like Ashley. This girl wears a whimsical heart patch on her knee, a measuring tape belt and a flower in her hair. Finally, the canvas was finished off with 3 dimensional embellishments like a miniature vintage sewing machine, a spool of thread, a pair of scissors and plenty of colorful buttons!

This happy canvas is perfect for anyone who loves to sew, needs a little reminder to choose joy, or simply perfect for anyone who's a fan of Ashley's. So...be sure to visit the auction between 2/27 and 2/29 and bid on this canvas to help alleviate a little of the financial burden of her cancer treatment.

Choose Joy Auction and Benefit - Supporting Ashley Hackshaw

I'm SOOOOO thrilled and proud to be participating in this incredible auction benefiting my dear bloggy friend, Ashley Hackshaw of Lil' Blue Boo. I'm finishing up my donation item; a mixed media canvas in honor of Ashley. The team has stopped accepting items at this time, due to an overwhelming response and hundreds of items being donated! YAY! I'll show some pics of my canvas when it's completed, but in the meantime, I wanted to spread the news about this incredible on-line event.

I was honored to be one of Ashley's first pattern testers when she was starting her Lil' Blue Boo business. I've learned so much about sewing from Ashley. That's a little hint at the theme of my canvas ;). You can read about that first pattern and the crazy backstory of how we got connected, here. I can't believe I've still never met her in real life! Of course, I feel like I already know her through our mutual friends and through reading her blog. Her creativity and her attitude to "Choose Joy" is contagious. If you're part of the crafting world, sewing world, a DIYer, or blogger of any kind, you've probably heard of Ashley, and more recently, of her battle with a very aggressive cancer. Through all of the tragedy of the last year, Ashley remains determined to live her mantra to "Choose Joy".

The auction is being organized by several of Ashley's friends and as I said, hundreds of people have come together and donated items toward the auction. The proceeds will go toward Ashley's medical bills as cancer treatment is VERY expensive.

So, while you're sitting on the edge of your seat waiting for pics of my completed canvas (heee, hee!), head on over to Amy's blog and read more about the Choose Joy Auction and Benefit, which will support Ashley.

I don't know many details of the auction, but as I get more info, I'll be sure to share!

Daily Routine Chart and Behavior Chart

I mentioned in my last post that Taylor's sensory issues have become much more prominent in the last 6 months or so. I'll be blogging more about Sensory Processing Disorder as I have time, but for now I want to share a tool I developed for us to have more structure and less meltdowns in our day.

Taylor is a child who thrives on control. I know all children benefit from structure, but for Taylor, when her routine is out of whack and she doesn't know what to expect next, it sets her up for anxiety, uncertainty and horrible behavior. We had an occupational therapy evaluation last week to help us diagnose and treat the Sensory Processing Disorder that we see emerging with Taylor. One of the suggestions the OT had, was to have more structure in our days. The caveat, of course, being that all kids need time for freedom and free play.

I've been wanting to create a routine chart and a behavioral/reward system for Taylor for quite some time, to give her an added sense of control over her day. So, after looking at various resources, I found Sparkle Box. They offer 1000's of free printables. While most of their resources as aimed at teachers and education, they also have a section for parents and homeschooling. I printed off their daily routine cards, and cut out the ones that apply to us. I then used my Xyron machine and laminated each of the cards.

I included a heading that identifies the day of the week, under that I added what time of day/routine we were working on: Morning, Afterschool, Bedtime. Finally, I went through our routine and the basics of what needed to be done at each time of day and wrote it out on paper to help me organize the cards. This also made me realize that I need to make or find other cards for activities that weren't included in the set I printed. For example, I'm working on having Taylor take more responsibility for household chores, so I need cards that say "set the table" and "fold laundry" and "clean up toys". I also need to create some custom cards that include photos of her medications (asthma and allergy) and some of her sensory activities. You can see from the photo above that we don't have a picture to show the task of getting dressed. We'll be adding that!

Once I had the cards organized, I added velcro dots to the chart and the cards. I was able to determine that at this point, each of our routines has at most, 6 steps, so their are 6 velcro stickers that stay on the board and the cards are attached and removed as the routine is completed.

Other ways she can earn star stickers is by following her rules, and then there is opportunity for us to give her stickers for random good behavior. This makes us more aware of catching her being good. After a week of accumulating lots of stars, on Fridays she will get to choose one thing that she wants: either McDonald's, Wendy's, Dairy Queen or Starbucks. Now, I'm really not fond of offering food as rewards, but when Taylor outgrew her food allergies, we got in the bad habit of often grabbing fast food on the way home from school. This soon turned into her expecting fast food everyday. When I refused her requests, a major tantrum would ensue. So, the new rule is she can have fast food once a week, only on Fridays and this eliminates the daily battle.

I also added a calendar to the chart so we can see upcoming events and talk about them, count down the days until they happen, etc. Finally, I added a place for reminders and important notes/papers. Our fridge is not magnetic and so we can't use it as our central command center. This bulletin board is a great place to keep track of all the little things that I need to see or they get forgotten.

I'm sure I'll end up making changes to the board as we figure out what works for us. But, so far, Taylor loves the board and she's responding really well to the structure and knowing what's going to happen next.

A few weeks ago, during a very trying time of behavior problems, I wrote out a set of rules for Taylor. I decided to include the rules on her routine board and under the rules, I added a star behavior chart that I printed from Sparkle Box. I then purchased star stickers at the dollar store. There are 10 spaces for stars on the chart each day. At this point, Taylor gets one star for following each of her routines without a big fight. I give a little bit of leeway with "not a big fight" because I recognize that I have a very, very strong-willed child. I also like that she's assertive and I recognize that one of the rules she struggles with the most, is rule #1 Do as you are told. She's just not that compliant of a child (at least not at home!). That's not her personality. She often needs to do things "her way". So, as long as she follows her routines without a "big" fight, then we're happy and she gets a sticker.

Our system has quickly become an activity in itself. Taylor likes going to the board to see what's up next, she takes the cards down once she's completed the task, and she's responding really well to the star sticker system.

Do you have a system like this for your child? I'd love to hear how you manage routines and behavior in your home.

Catching up....

Um, OK, so my long blogging breaks are becoming a pattern...See, I have every intention of blogging regularly. I think about blogging everyday. I go about our daily life and take pics and say to myself "that's so blog-worthy" and then the pics sit on my SD card for weeks and don't get edited. And then I think, really, do my readers really care what we did on a Saturday 3 wks ago? Seems kind of odd to post pics of our labor day festivities in the middle of October...Which reminds me I still haven't posted about Taylor's birthday party which was in May...um yeah, I'm a bit of a procrastinator even in my hobbies. But, heck, I've got to jump back in somewhere, right, so let's just play catch up. Who cares if they're not recent events I'm sharing with you...So, here's what we've been living that I should have been blogging about...

Our girl turned 5 and we celebrated with a special tea party with bright colors, cupcakes and closest friends.

We ended our summer with a trip to Canada to visit friends and family. Taylor got a taste of Canadian nature when we spent a couple of days hiking in Algonquin Park. This was the first time Taylor saw a fuzzy caterpillar, and the first time she saw chipmunks and black squirrels. She also had lots of fun playing with frogs in Grandad's pond.

I took lots of pics of these 2 girls. Sweet cousins! I absolutely LOVE this pic!

And when we returned, Taylor had her first day of kindergarten! She's at the same school that she's been at since she was 2. She went to preschool there and we're thankful they have a full-day kindergarten program. So, she'll stay there until next fall when she goes to 1st grade in a public school (gulp! - let's not talk about that yet, OK?)

And...as you can see from these pics, I'm officially a Soccer Mom. And, I'm lovin' it! It's been a challenge finding an activity for Taylor that keeps her interest, is challenging and fits her activity level. She's a very high energy kid and sometimes has trouble with sports or lessons that require her to wait her turn. We've tried gymnastics in the past, and while she loved it, she spent most of the time running around the gym, doing her own thing. Well, it appears as though soccer is her "thing". Taylor's been asking to play soccer since she could walk and talk. the Berenstain Bears play soccer, ya know ;) . We signed her up in the spring, and she asked to play soccer almost every night in the summer. She and John would kick the ball around in the back-yard. And, I'm not at all biased when I say, this girl's got some natural soccer skills. (Really, I'm not biased. at. all. ;) ).

Other very noteworthy events in our lives in the last few months....

- Taylor lost her first tooth and the Tooth Fairy made her first visit to our house and left a crisp $1.oo bill.

- Taylor's adjustment to kindergarten has resulted in an increase in her Sensory Seeking behaviors, and I'm certain we're on our way to a diagnosis of Sensory Processing Disorder. I'm very, very thankful that Taylor is excelling in school, but these behaviors are becoming more prominent and more problematic at home. We were had an appt with our pediatrician today and she'll be submitting a referral for an occupational therapy evaluation. Now, we just need the referral to be approved. I'll definitely be posting more about this complex and often misunderstood issue.

- The highlight of the last few months is that I've reconnected with my brother! I'll spare you the details of my complex family and childhood, but I'll say that I grew up in Canada and I have a brother who is 13 yrs younger than me, who grew up in Pennsylvania. Well, he's now in the military and he's stationed in Southern California! Now that we're about 2 hours from each other, we've been seeing each other 2 or 3 times a month and we're having so much fun together. Taylor absolutely adores having her fun uncle around, and I'm loving having my 6'3" "little"brother around.

So, the last few months have been very busy and full of blessings. So, there ya go...I think we're all caught up!